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Blog: Keeping it Together When Your Child is Chronically Ill
When your child is diagnosed with a chronic illness like diabetes, asthma or cystic fibrosis for example, your world is suddenly like the inside of a snow globe... everything is moving in a flurry of activity and constant change. But eventually, when the fear and panic subside and your child's condition is more or less under control, you as a parent are left with the task of guiding your family's return to "normal" life. Continue reading
During a seizure:
* Stay calm and note the time the seizure begins.
* Loosen the clothing around the person’s neck and place something soft under their head if they have collapsed to the ground.
* Do not try to hold the person down or restrain them, as this could cause an injury.
* Contrary to popular opinion, do not insert any objects in the person’s mouth, as this can also injure them.
* Reassure concerned bystanders who may be upset. Ask them to remain calm and give the person room.
* To prevent injury, remove any sharp objects, such as glasses, furniture and other objects, that happen to be within the person’s reach.
* Stay with the person until the seizure subsides. Continue reading
Hemophilia is a very rare disorder, where a lack proteins called ‘clotting factors’, prevents excessive bleeding in those afflicted. Even minor cuts and bruises have the potential for heavy blood loss. This genetic disorder is passed down through a family's genes and occurs almost exclusively in men.
The most disconcerting problem for people with hemophilia is internal bleeding, especially bleeding into joints like the knees, elbows, and ankles. When bleeding happens inside the joint, it becomes very swollen and painful. Repeated bleeding into a joint can lead to severe arthritis. Internal bleeding in vital areas such as the brain, throat, and abdomen can be life-threatening.
A person with mild hemophilia may only experience problems with bleeding during surgery, major dental work, or injury. A person with moderate hemophilia will have those problems plus bleeding problems with more minor injuries such as a hard bump to the knee. A person with severe hemophilia can have what are called spontaneous bleeds, where bleeding starts inside the body for no known reason. People with hemophilia this severe should consider getting a personalized ID tag. Continue reading
Seizures are disorganized, electrical discharges of the brain and can have multiple causes. Anyone who has watched another person suffer through a seizure can explain the flurry of emotions that flood onlookers. Despite most people knowing what a seizure looks like, few know how to respond. Whether a friend, coworker, family member, or stranger—knowing a little seizure first aid may greatly help someone having a seizure, and may even save a life. A seizure can be a scary experience for everyone, however, knowing what to do can help the seizure victim avoid injuring themselves. Continue reading
Even though epilepsy is the 4th most common neurological disorder, affecting an estimated 1 in 26 people at some point in their lifetime, there’s still a great deal about seizures that many people don’t know. One of the first questions many people have is: what are triggers for seizures? While for more than half the people with epilepsy have no identifiable causes of the condition, for the other half the condition can be traced to a variety of factors.
Identifying and understanding the triggers, symptoms, risk factors and preventative measures for seizures are vitally important for helping to minimize their occurrence and potential complications. Some people find that seizures are more likely to occur in certain situations and keeping track of those factors that may precipitate a seizure can help you recognize when a seizure might be coming and what triggers you should try to avoid. Common triggers for seizures can include: Continue reading
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